Privacy Policy

Red keyboard button with the word "Privacy" and a lock image on it.

Commitment to Privacy

The privacy of our Internet visitors is important to IPRO. We understand that visitors need to be in control of their personal information. This Privacy Policy applies solely to information collected at IPRO websites and mobile applications.

General Information

You do not have to give us personal information to visit our sites. If you choose not to provide personal information, you can still visit IPRO websites and view our mobile applications.

We offer links to other websites. Please note: When you click on links to other websites, we encourage you to read their privacy policies. Their standards may differ from ours.

IPRO reserves the right to change the privacy practices described in this notice if the practices need to be changed to be in compliance with the law. As our privacy policies change in significant ways, we will make every effort to notify you of the changes. Minor changes to the policy that will not affect our use of individually identifiable information may occur. When the privacy policies change in a way that significantly affects the way we handle personal information, we will not use the information we have previously gathered without obtaining consent from the appropriate individual. We will post privacy policy changes on our websites in a timely manner.

IPRO’s websites and mobile applications are designed and intended for use by adults, and are not intended for, nor designed to be used by persons under the age of 18. Minors under the age of 18 may register for our websites that collect or present personal health care information only with the prior written consent of their parent or legal guardian, and then only under the direct supervision of that parent or guardian. The parent or guardian is responsible for providing supervision to ensure the minor’s authentication information is kept secure and the credibility of the health record is maintained. We do not collect personally identifiable information from any person we know is a child under the age of 13.

Information and Data Collected

A cookie is a small piece of information that is sent to your browser — along with a Web page — when you access a website. There are two kinds of cookies. A session cookie is a line of text that is stored temporarily in your computer’s memory. Because a session cookie is never written to a drive, it is destroyed as soon as you close your browser. A persistent cookie is a more permanent line of text that gets saved by your browser to a file on your hard drive. You do not need to have cookies enabled to visit an IPRO website.

 

Visitors to each of our websites can access the website’s home page, and browse areas of the site, without disclosing any personally identifiable information. We do track information provided to us by your browser, including the website you came from (known as the “referring URL”), the type of browser you use, the time and date of access, and other information that does not personally identify you.

For mobile applications, data collected may include device information, zip codes or county locations as well as the type of care settings (e.g., dialysis/outpatient, home health and hospice, or nursing homes) for which information is sought by the user.

Information and Data Use

We use information and data to operate and maintain the Internet site and mobile applications, personalize content, improve user experience and to monitor performance.  We do not sell your personal information or data. We may share information or data with service providers who help us operate this Internet site or mobile applications and to comply with law and regulations.

Cookies and similar technologies are used to remember preferences and settings, understand usage trends and improve performance and to provide certain features. You can control cookies through your Internet browser settings and, where applicable, through your device settings.

IPRO intends to use data collected on our mobile applications to promote the sending of tailored push notifications based on user type and location, analytics, and functionality, as well as reporting overall application use and reach.

Aggregate data may be shared and reported in project presentations or publications.

IPRO’s Safeguards

We have administrative, technical and organizational safeguards in place to protect an individual’s protected health information. These include:

  • Workforce training on IPRO’s confidentiality and privacy policies and procedures
  • Implementing administrative, technical and physical controls to comply with HIPAA, the HITECH Act and other government requirements
  • When necessary, executing written business associate agreements or data use agreements with external parties in order to maintain the privacy and security of protected health information

While IPRO will make every attempt to protect the personal information that you share with us, electronic mail is not secure against interception. If your communication is very sensitive, you may want to send it by postal mail instead.

Never send personal information regarding any medical condition, history or diagnosis in an email message to us. Never send any personally identifiable or otherwise sensitive information in an email message. Never disclose your password or any other security token in an email message. IPRO will never ask you for your password.

When IPRO is Required or Permitted to Use or Disclose Protected Health Information

Based on the HIPAA Privacy Standards, IPRO is required or permitted to use or disclose protected health information to an individual, someone acting on behalf of the individual or to the government. Some examples include:

  • Individual or personal representative makes a specific request for the protected health information
  • Government compliance investigations, reviews or enforcement actions
  • For the purposes of treatment, payment or health care operations
  • Public interest and benefit activities
  • Limited data sets

Personally Identifiable Information

We may collect personally identifiable information (name, e-mail address, physical address, and other unique identifiers) only if specifically and knowingly provided by you. IPRO uses list servers to send out information and notices to subscribed users of our sites.

Personally identifying information collected will be used only in connection with IPRO contract activities, or for such purposes as are described at the point of collection.

Information collected is used for statistical purposes. IPRO performs analyses of user behavior in order to measure user interest in the various areas of our sites.

IPRO will protect the personal information that you share with us. IPRO does not disclose, give, sell, or transfer any personal information to third parties. If we share demographic information with third parties, we will give them aggregate information only.

Retention and Disposition of Data

We retain data only as long as necessary for the purposes described in this policy, including provision of services, maintaining accounts and records, security, and complying with legal requirements. Retention periods for data on this Internet site and IPRO mobile applications vary by data type and generally range from six (6) months to up to two (2) years. Data may be retained for longer periods if required by federal and state law or contract.

IPRO will delete or anonymize data and information when it is no longer needed for the purposes described in this policy and we will keep only what is legally and operationally required. Disposition and destruction of Internet and mobile application data and information will be carried out in accordance with internal policies. Some information and data may temporarily be stored in backups and will be disposed of when those backups expire. Deletion of records may be paused when required for investigations, legal claims, regulatory retention or enforcement actions.

Changes to this Policy

We may update this policy periodically. If we make material changes, we will provide notice via prominent display on the website or through in-app notices. Your continued use of this Internet site and IPRO mobile applications constitutes your acceptance of any changed terms and conditions.

Problem Resolution

If you have concerns regarding the privacy of personal health information, or if you have questions pertaining to IPRO’s privacy practices, please contact Tierre Jeanné-Porter, Esq., Vice President, Legal, Compliance and Contracting, at our headquarters, which is located at 300 Jericho Quadrangle, Lake Success, NY 11402, by calling (516) 507-9036 or via email at tjeanne-porter@ipro.org.

Last Updated: June 2, 2026